What we collect
Patients who see UF Health physicians at the Center for Movement Disorders & Neurorestoration have the option to allow us to track their condition in our central database. The information is gathered in clinic and used for treatment purposes. The data includes rating scales for specific disorders, medications, and a variety of quality of life scales (QOLs) and mood scales. We can track patients very carefully for subtle changes in motor or non-motor function. Also, we can use this information for research purposes such as recruitment for studies or projects to study characteristics of a specific movement disorder.
What we use it for
The information kept in our database is being used for several purposes, all aimed at finding better treatments and eventually cures.
- Tracking patterns of patient perfomance relative to their medications, deep brain stimulation or other treatments and conditions. This helps not only clinically, but also leads to many new research projects.
- The formation of a large clinical/research database can be linked to genetic information and tissue, and will hasten new discoveries.
- The data can help us to understand difference between patients, groups of patients, and diseases.
- The data repository allows us the ability to answer questions that are important, but statistically may take hundreds or thousands of patients to answer.
Data gathered so far
We have over 11,000 patients in our database, over 4,000 of which have idiopathic Parkinson’s disease.
|Nikolaus McFarland M.D., Ph.D.||PI, INFORM Database|
|Chuck Jacobson, BS||Data Manager|
|Pamela Deane, BS||Data Management Assistant|
|Brett Winter||Data Lab Assistant|
|Emma Leone, BA, BS||Data Lab Assistant|
|Anuj Desai, BS||Data Lab Assistant|
|Leana Pustam, BS||Consents patients|
Faculty Contributing Data and/or expertise
|Leo Almeida, MD||Neurology|
|Melissa Armstrong, MD||Neurology|
|Christopher Hess, MD||Neurology|
|Wei Hu, M.D., PhD.||Neurology|
|Irene Malaty, MD||Neurology|
|Nikolaus McFarland, MD, PhD||Neurology|
|Michael S. Okun, MD||Neurology|
|Bhavana Patel, MD||Neurology|
|Addie Patterson, DO||Neurology|
|Adolfo Ramirez-Zamora, MD||Neurology|
|Aparna Shukla, MD||Neurology|
|Sub Subramony, M.D.||Neurology|
|Shannon Chiu, M.D.||Neurology|
|Matthew Burns, M.D.||Neurology|
|Dawn Bowers, PhD, ABBP-CN||Neuropsychology|
|Russ Bauer, PhD, ABBP-CN||Neuropsychology|
|Catherine Price, PhD, ABBP-CN||Neuropsychology|
|Kelly D. Foote, MD||Neurosurgery|
|Frank Bova, PhD||Neurosurgery|
|Heather Simpson, OTD, MOT, OTR/L||Occupational Therapy|
|Nicole Tester, PhD, MOT, OTRL||Occupational Therapy|
|Lisa Warren, MHS, OTR/L||Occupational Therapy|
|Alison Kraus, PT, DPT, NCS||Physical Therapy|
|Karen Hegland, PhD||Speech, Language, and Hearing Sciences|
|Nicole Herndon, PhD||Speech, Language, and Hearing Sciences|
|Chris Hass, PhD||Applied Physiology and Kinesiology|
|David Vaillancourt, PhD||Applied Physiology and Kinesiology|
|Samuel Wu, PhD||Biostatistics|