Join us for the Huntington’s Disease 2021 Patient-Caregiver Symposium on February 25

The Norman Fixel Institute for Neurological Diseases at UF Health is excited to announce our first Huntington’s Disease Patient-Caregiver Symposium. It will be virtual on February 25 from 1 – 5 PM.

To register, email:

HDSA Logo with UF

Symposium Program
1:00 – 1:15PM Welcome and Introduction

Nikolaus McFarland, MD, PhD

Associate Professor of Neurology

Wright/Falls/Simmons Professor of PSP/Atypical Parkinson’s
Director, UF HDSA Center of Excellence

Addie Patterson, DO

Assistant Professor of Neurology

Norman Fixel Institute for Neurological Diseases

Associate Residency Program Director

1:15 – 2:00PM HD Research Update

Daniel Claassen, MD, MS

Division Chief, Behavioral and Cognitive Neurology

Director, Vanderbilt University HDSA Center of Excellence

Dr. Claassen is an Associate Professor of Neurology at Vanderbilt University Medical Center, with subspecialty training in movement disorders and cognitive neuroscience. He specializes in the diagnosis and treatment of neurodegenerative disorders characterized by disruptions to cognition, behavior, and movement.

2:00 – 2:30PM Genetic Testing in HD

Lee Kugelmann, MMSc, GC

Ms. Kugelmann is a genetic counselor at the Norman Fixel Institute for Neurological Diseases. She received her Master’s degree in Human Genetics and Genetic Counseling from Emory University’s Genetic Counseling Training Program.

2:40 – 3:10PM Disability and Legal Issues in HD

Allison Bartlett, Esq

Allison is HDSA’s Manager of Disability Program and is a disability attorney who specializes in guiding people with rare, chronic conditions, like Huntington’s disease, through the complex Social Security disability system. Allison holds a J.D. from the University of Cincinnati College of Law and a B.A. in International Affairs from James Madison University. She is admitted to the Virginia Bar.

3:15 – 3:45PM Caregiver Support

Latrice Williams, MSW

Latrice is a Social Worker at the UF Health Norman Fixel Institute for Neurological Diseases and helps coordinate the HDSA Center of Excellence and the Parkinson Foundation Center of Excellence. She received her Bachelor’s degree in Social Work from Saint Leo University and her Master’s degree from Walden University.

3:50 – 4:20PM Supportive Therapies: Staying Active

Alison Kraus PT,DPT,NCS

Alison Kraus graduated with a doctorate in physical therapy in 2013 from Ithaca College and a B.S. in Clinical Health Studies from Ithaca College in 2011. Alison was designated a Neurologic Certified Specialist in Physical Therapy in 2016 following her completion of the national board exam. Since completion of graduate school, she has worked in varying settings including acute care neurology, and outpatient neurology.

4:30 – 5:00PM Ask the Experts!

Question and answer session, followed by wrap-up.

About the Author


Charles Jacobson

Chuck Jacobson maintains the UFMDC Research and Clinical database called INFORM.

Read all articles by Charles Jacobson