Caregivers Month 2020

This year, the Fixel Institute joins the Parkinson’s Foundation in recognizing our care partners (Heros @ Home) for the National Family Caregivers Month.

Now, more than ever, we want to show our thanks and appreciation for those who give of themselves to ensure that their loved one living with PD is healthy and living a happy life.

Care partners and caregivers deserve to be recognized and celebrated.

Being a #HeroAtHome for a loved one with Parkinson’s disease can be an emotional roller coaster. That’s why we have the resources that can help you along the way

To do that, the Parkinson’s Foundation and other programs across the country have pulled together gathered resources to ensure that care partners and caregivers have the tools that you need to stay healthy and feel supported.

Read the Thank You from our Fixel Family Here.

A Day in the Life of a PD Caregiver

Contributed by Kathleen Mason with excerpts from the Davis Phinney Foundation

A  sampling of just some of what caregivers do every day for persons with Parkinson’s (PWP):

— Taking the PWP to all doctors appointments/ therapies and  overseeing the plan of care

thank you for stepping up

—Ordering and administering medications

— Providing hands on personal care as needed

—  Doubling and tripling up on household responsibilities

— Adjusting daily routines to include good “on times” for the PWP

— Keeping the home clean, accessible and safe

— Managing family, friends and social interactions to stay active

Caregivers are truly the unsung heroes behind the scenes.  They often witness things they cannot fix or make better despite their best efforts.  

Thanks to all the caregivers who step up every day and give their all — you are valued and appreciated! 

Parkinson’s CareGiver Resources

Fixel Support

Fixel Institute Patients & Caregivers

C.A.R.E.S. Program

C.A.R.E.S (Caregivers Accessing Resources for Emotional Support) is free, 1-on-1 counseling to caregivers of patients in the Fixel Institute who are currently experiencing emotional and mental strain while caring for a loved one. Can be provided by Zoom online.To schedule this FREE service, call our office at 352-733-2410 or email Jana Unislawksi.

CARES program

Fixel Institute Patients and Caregivers

Fixel Caregiver Support Groups

Join the Fixel Institute for their monthly caregiver meeting that occurs on the first Friday of every month and PWP/caregiver group on the third Friday of every month. Currently, sessions are being held virtually.

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Parkinson’s Foundation Helpline

Need immediate support? Staffed by nurses, social workers and therapists, the free Helpline is available to answer caregiver questions and concerns. Just call 1-800-473-4636.

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Finding Support

Support Groups

Access for a list of Parkinson’s Support Groups and Caregiver Support Groups across Florida.

support

PD Conversations

Join online discussion groups where you can connect with others who are sharing similar experiences to you and your loved one.

Male hand holding megaphone with Need Help speech bubble. Loudspeaker. Banner for business, marketing and advertising. Vector illustration.

2021 Care Partner Summit

Care partners have an enormous and often underappreciated job. Join the Parkinson Foundation At the 2021 Care Partner Summit to learn valuable tools for caregiving and networking.

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Children as Care Partners

Mommy has PD…But Its Ok

Educating your children about your diagnosis of PD can be challenging. However, the APDA hopes to make this easier with this cartoon.

mommy has PD

Practicing Self-care

WEbinar

Mental Wellness for Parkinson’s Care Partners

Thursday, November 12th- 2pm EST

davis phinney

15 Actionable Ways to Practice Self-Care

Taking into account the importance and tough job that a caregiver has, it is also critical that a caregiver takes care of themselves. The Parkinson Foundation provides 15 ways to practice self-care in this blog below.

selfcare

Caregiver Bill of Rights

Many caregivers can lose themselves and what brings them joy if they are not mindful of their own needs. Here’s some universal considerations for all caregivers…

Caregiver Bill of Rights

Parkinson Foundation

Self-Assessment Tool for Caregivers

Take this self-assessment quiz to see which areas of your life may need attention.

selfassessment

About the Author

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Heather Simpson, OTR/L

Heather Simpson graduated with a B.S. in Exercise and Sport Science with a minor in Early Education from the University of Florida in 2007. Following…

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